Program on Disability Research and Community-Based Care
Director: Darcy McMaughan, Ph.D.
Assistant Director of Operations: Jennifer Patridge Ozmetin
The PDRCC focuses on disability and community-based care. Following the World Health Organization's lead, the PDRCC defines disability in the broadest sense to cover physical, cognitive, psychological and emotional impairments; activity limitations; and participation restrictions. Community-based care encompasses those long-term supports and services delivered in a non-institutional setting. The aging of America, coupled with increased longevity for persons with disabilities and policies aimed at minimizing institutionalization (due to concerns about escalating costs and poor quality of care) has contributed to a growing demand for a wide range of long-term supports and services programs that are community-based. These programs are designed to care for special population with complex and chronic health conditions in the community. These special populations include but are not limited to, frail older adults, nursing home residents, children with intellectual and developmental disabilities, people living with chronic mental health conditions, and people living with chronic pain. A main goal of the PDRCC is to inform health policy related to complex and chronic health care needs for vulnerable populations. The majority of our current work addresses both the health care needs of older adults in nursing homes and children with special health care needs (CYSHCN).